Wednesday, January 12, 2005

THE TYPING TEST

I broke one of my rules today while talking with Peggy. I asked her if she knew who she was talking with and her answer was...No.

I didn't let it drop there, I said; this is your sister, Mary Louise.

 Oh, she replied.

Do you remember Mary Louise?

No.

Well, I remember you, Peggy.

You do? Why?

Because you are my sister and I love you.

OK.

I was reminded of my first interview for a job after graduating from school.

I walked into the office building downtown and asked for the interviewer. He walked out and invited me into his office. I wanted to make a good impression and had decided to call him by name but when the time came for me to use his name...I had forgotten it in my nervousness.

The interview went on and then came the time for a typing test. I sat down at the typewriter and watched as he took out a stop watch.

I felt so much pressure to do well on the test while still trying to remember his name.

He said, begin and I started typing.

I typed two paragraphs in record time and was feeling pretty good about my work. He took the paper out of the typewriter and a huge smile came to his face. Wow, I thought. I must have really done well.

Mr. "I still don't remember your name" showed me my typing test.  I had gotten my fingers on the wrong keys and typed two paragraphs of letters and numbers. There was not a coherent sentence in either paragraph.

Needless to say, I didn't get the job and I never forgot the feeling that I experienced that day.

It was a lost feeling of being in a building that I had never been in and not knowing my way around.

It was a feeling of not being able to remember a name.

It was a feeling of being judged.

It was a feeling of not being to produce.

It was a feeling of failure.

It was a feeling of embarrassment.

I wonder if this is what I do to Peggy when I ask her to remember who I am?

Her everyday life is like the typing test that I took those many years ago.

Peggy's days are jumbles of letters on a page and no one can read the words she has written.

When I took my famous typing test, I knew exactly what I was typing. I was looking at all the words and typed the words exactly as I saw them. I just had my fingers onthe wrong keys.

I started typing the words as I saw them but nothing came out on the paper that I had seen on the page but no one else could read what I had written.

Maybe, this is what happens to Peggy when she tries to answer my questions.

She knows what she is trying to say when she talks but I just can't read or hear the words as she writes them or as she sees them.

 I do think that Peggy knows exactly what she means when she tries to communicate.

I am the one who cannot understand.

I Love You Today, Peggy!

Mary Louise

Tuesday, January 11, 2005

REMEMBER ME THIS WAY

                        "REMEMBER ME THIS WAY" Jordan Hill

Every now and then..We find a special friend that never lets us down.

Who understands it All.

 Reaches out each time we call.

Your the Best Friend that I've found.

I know You Can't Stay.........But part of you will.. Never..Ever Go Away!

Your heart will Always stay!

I'll say a prayer for you and hope it will come true..That life will just be kind to such a gentle mind ......

And If you lose your way.....

Think back on yesterday.....

Remember Me This Way...Remember Me This Way!

I hung up the phone after my call to Peggy this morning and cried. It was nothing she did or didn't say......

It was just remembering and missing My Sister, My Friend. 

I Love You Today, Peggy!

Mary Louise

Monday, January 10, 2005

GOODBYE DOESN'T MEAN FOREVER

This slow goodbye to Peggy every day has taught me that with every goodbye.....I learn.

I have learned that goodbye doesn't mean forever, it just means for now.

I know that even though she doesn't remember me...I remember her and that is what is important.

I have learned to listen to her voice with my heart and not just with my ears.

I now hear the tender sounds in her jumbled sentences. I do not try to correct her speech or her thoughts. I just listen to her voice.

I understand that I do not need to fill up the silent spaces with chatter when we are talking.

I have learned that it is nice to hear her breathing on the other end of my phone line. I know, by hearing her breathe that she is hearing my voice even though she cannot respond.

I know that Alzheimer's disease is to blame for Peggy's lost memories and it was not her choice to forget about me or her life.

I am learning to deal with the fear of getting the disease myself.

I understand that I need not correct her jumbled sentences but listen to how hard she is trying to speak and sound normal.

I have learned that just hearing her voice is a privilege.

It is a empty feeling to know that someone you have known and loved all of your life has forgotten who you are but I have my memories of Peggy and that helps me through this journey.

Watching my sister disappear is a challenge to live with and to understand but understanding why she developed this disease would not ease the pain that I feel.   

I know that we will never go back to the way we were but I feel privileged because..............

I remember Peggy and I continue to learn from her as she continues to forget and to disappear from my life but .....

She will never disappear from my heart!

I Love You Today, Peggy!

Mary Louise

 

 

 

 

 

 

 

 

 

 

 

Thursday, January 6, 2005

A LONELY PLACE CALLED...ALZHEIMER'S DISEASE

I learned today that Peggy has been having bouts with violent behavior.

That is so unlike the Peggy that I knew. She was a gentle person who would never do anything to hurt anyone.

I wonder what is going through her mind when these violent episodes happen. Why is she fighting the people who love and take care of her? Is she afraid that someone will hurt her?

I asked her this morning if everything was alright and she said yes.   I asked her if she had been upset about anything and she seemed surprised by the question. I told her that I would always be here for her. Her response was...I Know.

There was a sound in her voice that hasn't been there and I have no way of knowing what to do to help her and that is a lonely place to be this morning.

When I used to sew, I would buy a pattern and follow the instructions. When dealing with a Alzheimer's patient...there is no pattern to follow. You just hope that you are doing the right thing.

I feel helpless this morning knowing that Peggy is struggling and having violent episodes.

I hate what this disease is doing to my sister. Her voice is still the same but the Peggy that I knew is almost gone.

I am so angry that this disease has erased the Peggy that I knew.

I am angrier that I can do nothing to stop it!

This disease is like watching a tornado come and knowing that there will be total destruction and all you can do is watch as it approaches.

It is like trying to find a place to hide from danger and there is no  place to hide. There is no safe place and so you just stand there and hope for the best.

This disease is like going to sleep and having a nightmare. You wake up and realize that it is not a bad dream at all but something that is really happening.

Watching someone you love die from Alzheimer's disease is like feeling afraid and scared and there is no one to comfort you. No one to tell you that everything will be alright because it will not.

It is like suffering from intense pain and there is no medication that can ease the pain or make it go away.

It is like crying all the tears of your life and never being able to stop.

The saving grace in my struggle of watching Peggy disappear is prayer. That is all I can do for her and for me.

After talking with her this morning, I prayed that her mind will find peace and that she will not be afraid as she continues to disappear from my life.

I miss you so much and I Love You Today, Peggy!

Mary Louise

 

 

Wednesday, January 5, 2005

A GENTLE SOUND FOR THE NEW YEAR

I heard a gentle sound while talking with Peggy today.

It was gentle sound to start off my New Year.

I called Peggy and when she answered the phone, I knew that she did not know who I was but I do think that she still recognizes my voice on some level.

Hey Peggy, This is Mary Louise. How are you today?

Good.

That's wonderful. What are you going to do today?

silence.

I could feel her struggle to answer my question and so I said, whatever you do, I know you will have fun.

Then, she laughed........

A laugh that was gentle and made me smile........

It made the call to my stranger~~~~ worth the while.

Happy New Year, Peggy!

I Love You Today!

Mary Louise

Tuesday, January 4, 2005

THE REAR VIEW MIRROR

I love starting a New Year.

It reminds me of preparing for a cross country trip in a car.             I will need to pack a lot of things for the trip to 2006. A map, flash light and first aid kit will be in my car. I will pack my suitcases for the trip but will try not to take too much baggage from 2004 with me.

This trip will be different because Peggy will not be an active part of my life this year. This will be the year that I start my trip into 2005 without the support of my baby sister.

It is a year when I will get into my New Year car and start a trip down a long, unfamiliar road to arrive safely at 2006.

I will keep my eyes on the road ahead and do my best to arrive at 2006 in good health and happiness.

I will drive the 2005 car of my life and take in all the sights as I travel. I know that there will be times when I will get lost while driving and will need to look at a map to know which way to go.

I will stop my car along the road of 2005 and sit and think and drink in the scenery and remember the past years. I will stop my car in 2005 and get out to take a walk to stretch my legs before continuing on the trip to 2006.

I will do my best to be a safe driver by watching the road ahead but....I will also look in my rear view mirror and see Peggy. 

Peggy will continue to be a passenger in the car of my life. She will be in my rear view mirror as I drive down the road that lies in front of me.

She continues to teach me while I drive and I know that she will always be a passenger in the car of my life.

I will continue to look ahead as I travel to see how far I have to go....

While glancing in my rear view mirror to see how far I have come and to see...........Peggy.

I Love You Today, Peggy!

Mary Louise

 

Saturday, January 1, 2005

HAPPY NEW YEAR

LOOKING FORWARD INTO AN EMPTY NEW YEAR STRIKES ONE WITH A CERTAIN AWE, BECAUSE ONE FINDS THEREIN NO RECOGNITION......

THE YEARS BEHIND HAVE A FRIENDLY ASPECT AND THEY ARE WARMED BY THE FIRES WE HAVE KINDLED....

ALL OF THEIR ECHOES ARE ECHOES OF OUR OWN VOICES.......Alexander Smith

 

HERE'S TO THE NEW YEAR AND TO MAKING THE ECHOES THAT I WILL RECALL NEXT NEW YEARS DAY!

SOME OF THE ECHOES THAT I WILL RECALL NEXT YEAR, WILL BE THE SOUND OF PEGGY'S VOICE ON THE OTHER END OF MY TELEPHONE LINE.

I LOVE YOU TODAY, PEGGY!

MARY LOUISE