tag:blogger.com,1999:blog-8464653406123595609.post659647279592082855..comments2023-11-03T02:25:06.498-07:00Comments on WATCHING MY SISTER....DISAPPEAR: WHILE THE BAND PLAYS ON.....Mary Louisehttp://www.blogger.com/profile/02546934635244187426noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-8464653406123595609.post-13136655490391682602004-11-05T18:25:00.000-08:002004-11-05T18:25:00.000-08:00Soooooooooooooooo touching...................Storm...Soooooooooooooooo touching...................StormieAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-8464653406123595609.post-7565172299669368812004-11-05T20:13:00.000-08:002004-11-05T20:13:00.000-08:00Mary Louise,I've been reading your journal and...Mary Louise,<br>I've been reading your journal and it's been breaking my heart. I cannot imagine how much your are hurting. I have Lupus and another auto immune disorder called Antiphisiploid Syndrome. Early onset dementia is one of the complications of this disease. I have been noticing myself getting confused and disoriented more often lately. I get lost and am no longer allowed to drive. I ask the same questions over and over again. My MRIs confirm vasculitis of my brain. You are a wonderful sister to Peggy. LuAnne<br>Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8464653406123595609.post-40047600200925954772004-11-06T15:09:00.000-08:002004-11-06T15:09:00.000-08:00Your sister is so blessed to have you to watch her...Your sister is so blessed to have you to watch her disappear, though. Think of the hundreds who have to disappear with everyone turning away. God bless you. http://journals.aol.com/mosie1944/MYCOUNTRYLIFEAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-8464653406123595609.post-34174942982060882722004-11-08T02:39:00.000-08:002004-11-08T02:39:00.000-08:00My beloved Grandfather lived with Alzheimers for a...My beloved Grandfather lived with Alzheimers for a number of years. I know how frustrating it can be. Though to feel you have lost your sister must be such a sad thing to deal with. I am so sorry. It sounds like you were very close, hold onto those memories and know that she would never have forgotten you, given the choice.<br>Sara xAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-8464653406123595609.post-86371672000183596262004-12-01T11:33:00.000-08:002004-12-01T11:33:00.000-08:00the waiting is the hardest part. you have explain...the waiting is the hardest part. you have explained your anger, sadness and frustration very well. this cruel disease may take your sister, BUT IT CAN'T KEEEP HER! She will be free of her disease some day. You two will meet again on a different sad day. in saddness there is rejoicing. In anger their his healing. In bad things we can find good. in pain we can find a path that brings us to a better place with ourselves.<br><br>you are not alone Mary Louise.<br>But you are such a sweet sister! You are strong to keep calling your sister. You keep on calling her. If she could know it was you on the phone she's be laughing with more glea than she was that day. If her brain would let her, she'd be calling YOu to share laughter. You two will laugh together agian.<br>Love,<br>WendyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-8464653406123595609.post-24450172263230354902004-12-02T02:13:00.000-08:002004-12-02T02:13:00.000-08:00I have worked in a nursing home for three years. ...I have worked in a nursing home for three years. I have seen what living with Alzheimer's can do to a person, and what it can do to their family. It is a terrible disease, one that takes a person's mind but not their body. After reading what you have written, I can tell you that I have seen patients with Alzheimer's have visits or phone calls with their family, and not remember who they are; but not long after they have left or hung up they start talking about them.<br>There was a woman that I took care of. She had severe Alzheimers to the point where she was dependent of ALL her care. a co-worker and I would show her pictures of her family and she would tell us all about them. Sometimes they need something to trigger a memory from their past. I know how you are feeling, and it must be good therapy for you to write about it...<br><br>Beth<br>Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8464653406123595609.post-43835591367664040822005-10-12T13:30:00.000-07:002005-10-12T13:30:00.000-07:00Thanks for sharing xxThanks for sharing xxAnonymousnoreply@blogger.com